Gastrointestinal and pancreatic neuroendocrine tumors (GEP-NETs) are rare, with only 175,000 cases in the U.S. Their symptoms often mimic common conditions, leaving patients misdiagnosed and searching for answers for years. Stuck in a frustrating loop, the shock of diagnosis becomes both a moment of fear and a call to act.

Our idea was to break that cycle. By validating their experiences and showing that progress is possible, we empowered patients to demand more from their doctors and their treatment, transforming an endless “Groundhog Day” into a turning point.